¿Cómo se muestra la actividad de las enfermeras por las Consejerías de Salud? / How is the nursing activity shown by the Spanish regional health ministries?

Objetivo: Analizar los indicadores de enfermería y los resultados de su actividad publicados por las Consejerías de Salud de las comunidades autónomas. Método: Estudio observacional descriptivo por 2 observadores con buscadores web localizando las memorias de actividad de las organizaciones sanitarias autonómicas. Para cada página web institucional se evaluó la existencia de información de actividad relacionada con «enfermería/enfermera/matrona». Se analizaron los indicadores de resultados asistenciales, de calidad y seguridad clínica y su presentación. Resultados: Configuración de listado de 19 entradas de servicios públicos de salud con los indicadores específicos de actividad enfermera de cada uno, partiendo de 56 webs institucionales analizadas. El perfil de indicadores más frecuentes resultante es: actividad mostrada desagregada por áreas de salud, de 2019, en «PDF», sin visión de género ni de edad, centrados en el número de consultas, frecuentación y presión asistencial en atención primaria. Conclusiones: La oferta de indicadores sanitarios presenta una gran variabilidad estatal. Se puede valorar los aportes cualitativos y cuantitativos autonómicos, centrados más en la estructura, en medir la actividad para la gestión y en el nivel de la atención primaria, pero con un escaso enfoque en la medición de buenas prácticas. Se confirma que la información publicada no refleja la realidad de la actividad enfermera, siendo llamativa la deficiencia de indicadores a nivel hospitalario.(AU)

Objective: To analyse the nursing records and the results of their activity published by the Spanish regional health ministries. Method: Descriptive observational study by two observers with web search engines locating the activity reports of the regional health organizations. The existence of activity information related to «nursing/nurse/midwife» was evaluated for each institutional web page. The indicators of care results, quality and clinical safety and their presentation were analysed. Results: Preparation of a table including 19 public health services entries with specific indicators/records of nursing activity for each one, based on 56 institutional websites. The most frequently resulting profile of indicators is activity shown disaggregated by health areas, from 2019, in «PDF» format, without gender or age vision, focused on the number of consultations, frequentation and healthcare pressure in primary care. Conclusions: The supply of health indicators presents a great state variability. Regional qualitative and quantitative contributions can be valued, focused more on structure, on measuring activity for management and at the level of primary care but with little focus on measuring good practices. It is confirmed that the published information does not reflect the reality of nursing activity. Being striking the deficiency of hospital activity indicators.(AU)

How is the nursing activity shown by the Spanish regional health ministries?

OBJECTIVE: To analyse the nursing records and the results of their activity published by the Spanish regional health ministries. METHOD: Descriptive observational study by two observers with web search engines locating the activity reports of the regional health organizations. The existence of activity information related to "nursing/nurse/midwife" was evaluated for each institutional web page. The indicators of care results, quality and clinical safety and their presentation were analysed. RESULTS: Preparation of a table including 19 public health services entries with specific indicators/records of nursing activity for each one, based on 56 institutional websites. The most frequently resulting profile of indicators is activity shown disaggregated by health areas, from 2019, in "PDF" format, without gender or age vision, focused on the number of consultations, frequentation and healthcare pressure in primary care. CONCLUSIONS: The supply of health indicators presents a great state variability. Regional qualitative and quantitative contributions can be valued, focused more on structure, on measuring activity for management and at the level of primary care but with little focus on measuring good practices. It is confirmed that the published information does not reflect the reality of nursing activity. Being striking the deficiency of hospital activity indicators.

[Descriptive analysis of hospital activity indicators published by the Autonomous Regional Governments in the Spanish National Health System.] / Análisis descriptivo de los indicadores de actividad hospitalaria publicados por las consejerías de salud.

OBJECTIVE: The supply of health activity data by health regional governments does not have a current study of the issue. The aim of this study was to analyze and describe the indicators of hospital activity related to public health organizations (health departments in the Spanish National Health System) showing the most notable experiences in this regard. METHODS: Observational study. General Internet search engines were used to find and evaluate institutional web portals (Ministry of Health, regional health governments) detailing existence, availability, accessibility and quality of information (aggregation, update, format, gender and age vision) of hospital management activity offered between 2015-2019. Descriptive statistics were used with estimation of inter-observer concordance. RESULTS: Generation of a list of 22 web portals for public health services. All the institutions evaluated had information on hospital activity. It is complex to find, freely available, disaggregated (14), updated (2018), in PDF format (15), gender vision: 2 (Catalonia and Madrid). No. of indicators per region: between 10 and 99 (average=54). Kappa agreement index (κ)=0.84. Notable contributions: Catalonia and Madrid, with other practices to highlight (Castilla y León, Murcia). CONCLUSIONS: The analysis of the management information offered by health regional governments shows a generic pattern of information that is difficult to access, disaggregated and updated at least two years from the time of the study, with a wide range of indicators, reduced contribution of the gender vision and in PDF format, which makes research and teaching difficult.

OBJETIVO: La oferta de datos de actividad sanitaria por las consejerías de salud no dispone de un estudio actual de la cuestión. El objetivo de este trabajo fue analizar y describir los indicadores de actividad hospitalaria relacionada con las organizaciones sanitarias públicas (consejerías de salud/sanidad en el Sistema Nacional de Salud español) mostrando las experiencias más notables en este sentido. METODOS: Estudio observacional. Se utilizaron buscadores generales de Internet para encontrar y valorar portales web institucionales (Ministerio de Sanidad, consejerías de sanidad/salud autonómicas) detallando existencia, disponibilidad, accesibilidad y calidad de la información (agregación, actualización, formato, visión de género y edad) de actividad de gestión hospitalaria ofrecida entre 2015-2019. Se usó estadística descriptiva con la estimación de la concordancia interobservadores. RESULTADOS: Se generó un listado de 22 webs de servicios públicos de salud. Todas las instituciones valoradas disponían de información sobre actividad hospitalaria. Es compleja de encontrar, de libre acceso, desagregada (14), actualizada (2018), en formato PDF (15), visión de género: 2 (Catalunya y Madrid). Nº de indicadores por región: entre 10 y 99 (promedio=54). Índice de acuerdo Kappa (κ)=0,84. Aportaciones notables: Cataluña y Madrid, con otras prácticas a resaltar (Castilla y León, Murcia). CONCLUSIONES: El análisis de la información de gestión ofrecida por las consejerías de salud muestra un patrón genérico de información de difícil acceso, desagregada y actualizada como mínimo a dos años vista desde el momento del estudio, con un rango amplio de indicadores, reducida aportación de la visión de género y en formato PDF que dificulta la investigación y docencia.

Low back pain websites do not meet the needs of consumers: A study of online resources at three time points.

BACKGROUND: The popularity of the Internet as a source of health-related information for low back pain (LBP) is growing. Although research has evaluated information quality in health-related websites, few studies have considered whether content and presentation match consumer preferences. OBJECTIVE: The aim of this study was to evaluate whether LBP website content and presentation matched preferences of consumers with LBP, whether matching preference of consumers changed over 8 years as recognition of people-centred healthcare has developed and whether this differs between countries of Internet searching. METHOD: The most prominent and top 20 LBP websites were identified using common search engines in 2010, 2015 and 2018. Websites identified in the top 20 in 2010 were followed up if not identified in 2015 and 2018. Two reviewers independently evaluated websites with a 16-item checklist developed from research of consumer preferences. In 2015, websites were identified using searches conducted using IP addresses from Australia, the United States of America (USA), the United Kingdom and Canada. After removal of duplicates, 55 websites were evaluated in 2010. In 2015 and 2018, 33 and 28 new sites, respectively, were identified, and 37 previous websites were re-evaluated. RESULTS: In 2010 and 2015, websites predominantly originated from USA and were sponsored by "for-profit" organisations. In 2018, most websites originated from Australian "not-for-profit" organisations. None of the websites provided information on all content areas. At least 55% of websites were rated as poor or fair. No site rated as excellent overall. There was some worsening over time. Country of search did not affect results. CONCLUSION: Websites retrieved using typical searches did not meet information and presentation preferences of people with LBP.

Is Biblioleaks inevitable?

In 2014, the vast majority of published biomedical research is still hidden behind paywalls rather than open access. For more than a decade, similar restrictions over other digitally available content have engendered illegal activity. Music file sharing became rampant in the late 1990s as communities formed around new ways to share. The frequency and scale of cyber-attacks against commercial and government interests has increased dramatically. Massive troves of classified government documents have become public through the actions of a few. Yet we have not seen significant growth in the illegal sharing of peer-reviewed academic articles. Should we truly expect that biomedical publishing is somehow at less risk than other content-generating industries? What of the larger threat--a "Biblioleaks" event--a database breach and public leak of the substantial archives of biomedical literature? As the expectation that all research should be available to everyone becomes the norm for a younger generation of researchers and the broader community, the motivations for such a leak are likely to grow. We explore the feasibility and consequences of a Biblioleaks event for researchers, journals, publishers, and the broader communities of doctors and the patients they serve.